tag:blogger.com,1999:blog-8191367444095035928.post8793056535820700404..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: picking up the piecesPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-8191367444095035928.post-90939861888605395722010-01-03T08:26:00.674-05:002010-01-03T08:26:00.674-05:00I would try to say something sweet & encouragi...I would try to say something sweet & encouraging, but the truth is ... you're right. EB is horrible! It's not fair!! I was so happy to read that Jonah rolled over but then that was quickly followed by how wrong it is that something normal can hurt him so bad. Your family and all EB families deserve a miracle! Continuing to pray!Nashville TV Showhttps://www.blogger.com/profile/07233349260192922328noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-72936250834263873922010-01-03T07:54:40.675-05:002010-01-03T07:54:40.675-05:00Hi Patrice:
Thank you for the loving words for ...Hi Patrice:<br /> Thank you for the loving words for Leah. I know that this is God's will, but it sure hurts like he**. Leah is finally pain free and flashing that beautiful smile again.<br /> We will continue to pray for Jonah and for you and Matt. <br /> We will miss her so much. We hate EB and will continue to do all we can to find a cure so that no family will ever feel this pain. Take care and thanks again. We love you guys so much. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-33481423303563442682010-01-02T22:00:10.249-05:002010-01-02T22:00:10.249-05:00Hope it is ok, but I posted a link to your blog on...Hope it is ok, but I posted a link to your blog on my blog today when I told the story of Leah. I have done a post on Jonah before, and one on Tripp, but today was about Leah, but a lot of mention was made to you guys. You are in my thoughts and prayers as you sort though the loss of LEah!Carolhttps://www.blogger.com/profile/13059278959057152861noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5582261655380266262010-01-02T21:56:45.622-05:002010-01-02T21:56:45.622-05:00Just today I was telling a friend about how the ki...Just today I was telling a friend about how the kids skin hadn't bled this winter due to their eczema when I thought of Jonah. Twice a year my kid's skin bleeds when the seasons change...not daily, weekly or otherwise. <br /><br />I don't know how you do it. <br /><br />The grief over Leah is profound. <br /><br />Praying for you all.jaymieghttps://www.blogger.com/profile/03034378459163805366noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-85651458364854310432010-01-02T21:37:45.678-05:002010-01-02T21:37:45.678-05:00God put you on my heart tonight. He often does.
I...God put you on my heart tonight. He often does. <br />I HATE EB TOO! I hate it so much. I hate it of for you and I hate it for precious Jonah (who by the way gets cuter every day!)<br />Just wanted you to know I'm praying for you tonight for endurance.Kellyhttps://www.blogger.com/profile/02962409524106496122noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-54006403020581061982010-01-02T21:00:58.670-05:002010-01-02T21:00:58.670-05:00I have not commented until now, but for some reaso...I have not commented until now, but for some reason something inside me told me to make sure I commented. I have followed your story for a while now through another blog, and I love evrything about your blog. I think your an amazing mother to Jonah. Jonah is so hansome and I just love him! I think he is so darn cute....his smile gets me! There is something special about him! Anyways, I can relate to some of the things you write. I also am so sad for Leah and her family (also started reading her blog through yours). I jus contiue to pray and pray! Please know I am thinking of you all!~Lisa~https://www.blogger.com/profile/07871192334718452629noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-44396472995219859132010-01-02T20:04:14.293-05:002010-01-02T20:04:14.293-05:00He sentido muchisimo la muerte de Leah. He estado...He sentido muchisimo la muerte de Leah. He estado rezando por su familia, y por supuesto que por tí, Matt y Jonah. Jonah es un bebe muy afortunado, ya que sus padres son unidos, fuertes y llenos de fe. Con estas tres cosas, GRAN parte del camino esta recorrido. Un gran abrazo para Jonah!AL VIENTOhttps://www.blogger.com/profile/09585472163158081919noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-68337536820202962482010-01-02T19:03:58.977-05:002010-01-02T19:03:58.977-05:00I was telling my husband about Jonah, Tripp and Le...I was telling my husband about Jonah, Tripp and Leah last night and he was in disbelief what a horrible disease EB is. I hate EB with every fiber of my being as well. It is not fair to have to live the way Jonah (and you) live. Constant prayers for all of you.Carriehttps://www.blogger.com/profile/17534118791782849210noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-3210349261271070582010-01-02T17:10:21.251-05:002010-01-02T17:10:21.251-05:00Love the new pic. I know you must be sad. Lifting ...Love the new pic. I know you must be sad. Lifting you up in prayer.Debbie,mother of twohttps://www.blogger.com/profile/10298741861779331155noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-188686094694414932010-01-02T16:41:05.767-05:002010-01-02T16:41:05.767-05:00You have an amazing heart. I am praying for you a...You have an amazing heart. I am praying for you and your sweet Jonah now. You are a brave family....I know God is so near to you. <br /><br />So many are weeping with you...I cannot imagine the weight that your heart carries. Praying your heart is strengthened with each breath you take. <br /><br />Sending much love to you...Laurahttps://www.blogger.com/profile/06017145301712599958noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-79766053265129397462010-01-02T16:06:10.292-05:002010-01-02T16:06:10.292-05:00I'm fighting back tears as I read this post.
...I'm fighting back tears as I read this post. <br />The unfairness of EB is just staggering. No baby should have to endure it. <br />I truly believe that God is love, and that His ways are far above ours, but my human mind wonders how He can allow it. There is so much pain on this earth.<br />My prayers are with you.I'm Erin.https://www.blogger.com/profile/02626333490835483567noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-61230931986086190612010-01-02T16:00:28.114-05:002010-01-02T16:00:28.114-05:00he estado siguiendo el blog de leah solo un poco d...he estado siguiendo el blog de leah solo un poco de vez en cuando, pero aún así me ha dejado destrozada la noticia de su muerte, tan repentina.<br />qué injusto que los niños tengan que sufrir, tengan que morir...<br /><br />el único consuelo es pensar que ya no sufrirá más.<br /> <br />todos la llevaremos en nuestro corazón.jardinera lindahttps://www.blogger.com/profile/16932704231886236979noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2430992703159747082010-01-02T15:55:30.274-05:002010-01-02T15:55:30.274-05:00I am so sorry that you and Matt have this burden t...I am so sorry that you and Matt have this burden to bear. I want to rant: "It's not fair!", but then I don't know what is fair. What I do know is that God expects us to bear one another's burdens. I'm not exactly sure what that looks like when I'm not your neighbor and can't bring you chicken soup and sit and hold your hand and pray with you. But since you've reached out into cyber-space and shared your burden, perhaps I can reach out into cyber-space and virtually hold your hand and raise my voice in prayer for all the struggles you are facing. And I know that I am alone. You have a cyber-army of prayer voices, people who are bearing the burden of EB along with you. It's probably one of those things that you would only know its worth if you didn't have it. And so you'll never know.......<br />God Bless all 3 of you.<br />WendyBeeWendyBeehttps://www.blogger.com/profile/07171619702536045694noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-47330764613865439592010-01-02T15:07:46.445-05:002010-01-02T15:07:46.445-05:00I think of you and your family often and can't...I think of you and your family often and can't imagine how difficult this must be. Know that your honesty, faith, humor, love and baby Jonah have made a difference in my life. Praying for you!Summerhttps://www.blogger.com/profile/09782941072286801273noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-1377292612917649062010-01-02T14:09:30.555-05:002010-01-02T14:09:30.555-05:00You know, EB just sucks. It really does. It is cru...You know, EB just sucks. It really does. It is cruel and unforgiving. Aren't we blessed that God is the exact opposite? And I KNOW I am blessed to have "met" you and to be able to pray with you along this road. Jennifer in Southeast, NCJenniferhttps://www.blogger.com/profile/16629963999337344921noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-38781471809699745872010-01-02T12:12:07.388-05:002010-01-02T12:12:07.388-05:00Dear Patrice,
I am so sorry Jonahs skin has sloug...Dear Patrice,<br /><br />I am so sorry Jonahs skin has sloughed off like that. I hate EB every time I read Samantha Sheridons caring bridge site. It truly is a rotten thing to have and I sooo pray they find a cure real soon!! It just broke my heart to hear about little Leah!<br />Every time I read about the troubles poor Evan is having it breaks my heart! This disease needs a cure! Praying to God!!Ellenhttps://www.blogger.com/profile/17943990816917231476noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-27979700346217907472010-01-02T12:02:58.816-05:002010-01-02T12:02:58.816-05:00Yup. It stinks living in a fallen, sinful world. ...Yup. It stinks living in a fallen, sinful world. I hurt for all of you and Leah's family and the others affected by EB, and I'm praying! I do agree that Leah got the best end of the deal. I will continue praying for her loved ones who are hurting so much.Krystalhttps://www.blogger.com/profile/06271566505689962441noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-80622751060586995482010-01-02T11:50:36.458-05:002010-01-02T11:50:36.458-05:00I'm so sorry Patrice. I am praying for you. ...I'm so sorry Patrice. I am praying for you. I know it can't be easy at all.Heatherhttps://www.blogger.com/profile/13464851421397863762noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-12549811447264945522010-01-02T10:16:50.323-05:002010-01-02T10:16:50.323-05:00I am happy to hear Jonah is eating better. I am c...I am happy to hear Jonah is eating better. I am crying over the loss of Leah--only know her through the blog- I am praying for her mom & day & other family members to be wrapped in the arms of Jesus. Comfort can only be found through HIM at this time. <br /><br />I am praying for Jonah to be healed & asking God to give you & Matt the peace & understanding & strength to endure this HORRIBLE disease.<br /><br />I have followed your blog since Jonah's birth & have met you one time, but I love you like you are my family. Your faith & love of God has had a great impact on my life. I have been praying exceptionally hard for God to comfort you & Matt during this time of mourning Leah, her death brings it to close to home.<br /><br />Love & prayersWanda Wilkinsonhttps://www.blogger.com/profile/13906339828027614897noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-29975870946546338482010-01-02T10:06:18.052-05:002010-01-02T10:06:18.052-05:00I've been following your blog, but this is my ...I've been following your blog, but this is my first time leaving a comment. I am praying for your family and for your sweet baby boy. Your story has been such an inspiration to me, as has been the way that you have handled it with such grace,strength, and faith. My wish is that God blesses you with a healthy happy new year!Lisa Stonehttps://www.blogger.com/profile/06223962000139648931noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-50101548777921772322010-01-02T09:46:22.989-05:002010-01-02T09:46:22.989-05:00my heart breaks for all the EB families and those ...my heart breaks for all the EB families and those who know them.I is so hard to understand. I can't even begin to imagine what you go through. i pray for you all the time. I feel like I know ya'll! i hope to meet ya'll in person one day. I am in NC now visiting my husband's family. I should have contacted you sooner! I too am grieving a great loss. My best friend\sis in law's husband was killed in a car crash last New Year's Day. Samarah lost her husband, bff, father to her children and I just weep over not understanding things sometimes. We can't even wrap our minds around why things happen. i think that is where faith comes in hebrews 11:1~ faith is being sure of what we hope for and certain in what we do not see~ i try to remember this~prayers and hugs, and blessings~erinerinhttps://www.blogger.com/profile/00584490622248840945noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-64067155463440572802010-01-02T09:33:59.441-05:002010-01-02T09:33:59.441-05:00I wish I could give you a hug. I really have no wo...I wish I could give you a hug. I really have no words.Tiffanyhttps://www.blogger.com/profile/17435587559894367861noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-20357475752227567512010-01-02T09:24:02.294-05:002010-01-02T09:24:02.294-05:00sweet pictures. i'm still grieving Leah too, ...sweet pictures. i'm still grieving Leah too, and I don't know them..or you guys, personally. She just captured our hearts. I'm praying for Jonah's new wounds to heal fast, and praying that you will be able to grieve and work through these hard emotions that Leah's passing has brought up. May God bring you peace & comfort - all of you. BTW, my son's favorite baby food was that same summer veggie dinner - it's nasty! but glad he found something he liked. so funny that Jonah liked it too : )The Rodgers Familyhttps://www.blogger.com/profile/11635180658564655122noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5913656345087150382010-01-02T07:51:26.382-05:002010-01-02T07:51:26.382-05:00Thank you for continuing to share what you are fee...Thank you for continuing to share what you are feeling and precious pictures of Jonah. You're right. This disease is horrifying. I can't even begin to imagine what you face with your beloved little boy. How much it must hurt when you really think about it. I'm glad God gives you the grace to go through your days with a sense of your new normal most of the time, but I wish God would go ahead and provide a cure. I don't understand so much about what we believe. I guess that's where faith comes in, but I don't know how you manage to have it when you endure something like this.<br /><br />--Kelley in GAjandklandhttps://www.blogger.com/profile/03228086978737796576noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-60227515412183407422010-01-02T07:42:18.037-05:002010-01-02T07:42:18.037-05:00Happy New Year to you and your family Patrice! I ...Happy New Year to you and your family Patrice! I admire your strength and courage with ALL that you have to deal with! Jonah is so lucky to have you and Matt as his parents! You WILL find the strength you need to get through...second by second...minute by minute, hour by hour, day by day, week by week and year by year! You will all continue to be in our prayers!<br /><br />Love from TX!<br />PattyPattyhttps://www.blogger.com/profile/17181938643567663162noreply@blogger.com