tag:blogger.com,1999:blog-8191367444095035928.post8064253517513809744..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: sweet peas for my sweet peaPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-8191367444095035928.post-72995114145147274102009-10-13T18:52:29.621-04:002009-10-13T18:52:29.621-04:00I LOVE these pictures! It looks like he just ate ...I LOVE these pictures! It looks like he just ate the Grinch!Meimhttps://www.blogger.com/profile/03610015959570193019noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-44898498356174544762009-10-11T16:39:14.646-04:002009-10-11T16:39:14.646-04:00I read and pray for Jonah daily and LOVE seeing pi...I read and pray for Jonah daily and LOVE seeing pics. I am praying that he does not need a g-tube but KNOWING where I have been as a mother and knowing what a RELIEF it is to have a g-tube. <br /><br />I don't know if you have seen a g-tube (mic-key) in action but there is no actual TUBE protruding from the child's body. It is a low profile "button" that has an "open and close" valve. The tubing to the pump hooks up and locks when turned 1/2 turn... then unlocks by reversing that. <br /><br />For our daughter, she was not even ON the growth chart due to hearth issues, being born with no anus, 1/6 of her upper intestine is dead, reflux, neurological issues etc. When she was 8 weeks she would just SCREAM in pain when she ate the 1/2 oz we could get down and then I SWEAR she puked UP more than we put down. We were admitted and given an NG tube. She kept that for 10 months. It was SUCH a welcome relief to be ABLE to feed her without pain, fighting, etc. I actually CRIED tears of joy when feeding her (in her peaceful sleep) with the tube the first time. It did not stop all of the puking but we have learned our limits with the tube. Her overall capacity of her stomach is 250 ml over 1 hour period. You cannot do ANY more or it all comes back up.<br /><br />Kyleigh had her G-tube (mic key) placed at 18 months. We opted AGAINST the Nissen due to other circumstance because you can do the mic-key surgery with a simple laproscopy and then nissen is invasive. <br /><br />She is now almost 3.5 and STILL cannot consume more than 100 calories a day by mouth. We have avoided NUMEROUS hospital admissions and other issues by having the ability to "force" feed fluids, meds, and formula (elecare) through the tube. Today she feeds 95% through the tube and I can say without a shadow of a doubt, it is the BEST thing we have EVER EVER done for her, for ourselves, for our other kids. We hook Ky up to the pump, set it to our settings and she feeds through the night to get her 1000 calories,wakes up in the AM and goes tube free all day. We encourage her to eat but we do not force. A tube CAN be a welcomed friend so please don't be too scared!<br /><br />Hugs to you... if you ever want to chat about the tube or have ?? please feel free to email me!!Amber Schmidthttps://www.blogger.com/profile/14255596603226871737noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-68668952222447205932009-10-09T22:04:37.583-04:002009-10-09T22:04:37.583-04:00To stinking CUTE!!To stinking CUTE!!Melissahttps://www.blogger.com/profile/03383383856230429764noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5209524660646028082009-10-07T23:07:24.164-04:002009-10-07T23:07:24.164-04:00Lovin that boy's green mouth! He seems to be ...Lovin that boy's green mouth! He seems to be enjoying it too!Sandynoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-80739600297827799312009-10-07T17:41:16.174-04:002009-10-07T17:41:16.174-04:00I have never commented, but have been a loyal read...I have never commented, but have been a loyal reader of your blog since shortly before Jonah's birth. <br />I am an early interventionist, and I work with special needs, medically fragile, and "high risk" infants through preschool aged children - many of them have feeding tubes, and many of them require very hard work when it comes to feeding aversions related to their health conditions, sensory integration issues, and textural preferences with food. <br /><br />My thoughts are that he very well may experience discomfort inside his mouth and throat due to texture and or/acid composition in the solids he has been introduced to. We don't want him to associate solids with pain or he will NEVER want to take them! Applesauce is rather rough in texture, as is oatmeal - stay away from pureed foods that are gritty, like pears. Prunes, sweet potatoes, peaches, and baby food banana are all very smooth and might make it down his throat with less of a fuss. Also, absolutely start him on YoBaby yogurts! The live bacteria will be great for his gut, the texture is silky smooth going down.<br /><br />Know that many babys "skip" the pureed baby foods altogether and go right to TEENY TINY pieces of table food - so what Jonah is exhibiting now is developmentally normal. Mime the chewing motion to him every time you go to put something in his mouth - make it a BIG deal - and if he seems to start to do the "chew" even when you offer him pureed stuff, you can try him on smooth tofu, overcooked pasta, etc.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-53014863214744852922009-10-07T15:22:49.216-04:002009-10-07T15:22:49.216-04:00Somehow stumbled upon your site and have read abou...Somehow stumbled upon your site and have read about your precious little angel. I pray that you all find answers for your little guy. He's a cutie pie.Rebeccahttp://www.peatot.com/profile.php?username=rebeccatnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-66551549671415883462009-10-07T14:55:05.466-04:002009-10-07T14:55:05.466-04:00I'll keep praying that Jonah continues to get ...I'll keep praying that Jonah continues to get the nutrition he needs and that you won't have to do anything drastic. We already know God has proven that he can keep Jonah's weight right where it needs to be, even if it seems like he is not eating enough. The pictures of him with the peas all over his face are so cute :) Have you tried any of the dinners for him? Like the ones with meats? My little guy loves the ones that have a meat in them. I'm not sure if Jonah is old enough for those or not, though.<br /><br />This is such a difficult time of year with everything that goes around. I will pray Jonah stays healthy. Just this morning I had to take my little guy in to the Dr's office and saw a whole family wearing masks and got a little freaked out about what bugs were lurking in that office! <br /><br />~AmyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-79426952385239434172009-10-07T14:26:26.164-04:002009-10-07T14:26:26.164-04:00Hey!
I have been reading your blog since March......Hey!<br /><br />I have been reading your blog since March...before my little boy was born. I remember thinking and telling my husband after seeing Jonah..."I hope our little boy is that cute!" Jonah is the cutest baby! My hubby and I just delight over your photos and videos of Jonah, we laugh so hard at his little personality :) He has a big sense of humor! What a blessing :)<br /><br />Anyway, I just had to post this time...I don't know if you've tried playing a little baby einstein (or whatever) while Jonah is in his highchair, but that just may work. A friends little boy had reflux and that is THE only way they could get him to eat solids. They had to set up a whole station, get him really zoned out with some baby einstein, and then proceed to feed him while he was nice and zoned :) <br /><br />My Caleb has severe reflux (GERD) and we've been through several med changes. I look forward to solids one day, but will probably have to do the distaction method too! :)Meghttps://www.blogger.com/profile/06179428965760512403noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-63874543486638270892009-10-07T13:22:39.886-04:002009-10-07T13:22:39.886-04:00Patrice - I've been praying for Jonah and read...Patrice - I've been praying for Jonah and reading your blog for quite a while now. Blessings to you and yours. Just want to offer a suggestion - you may have already tried or it's just not something you want to do but....Do you ever sit Jonah on your or hubby's lap while eating yourselves? If so, is he even a little interested in your food? Sometimes just a dollop of thinned mashed potatoes on your finger that go into his mouth make it much more yummy. I would try different foods, but more in their natural state. Something I was eating also. You know how everyone's food looks/tastes better than yours!! Also, I would often mix the veges and fruits together. No, it hasn't affected how my kids eat today!! What about yogurt? You can get non-dairy yogurt. Will continue to pray for you and yours. MicheleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-14745891544114152992009-10-07T13:05:07.901-04:002009-10-07T13:05:07.901-04:00I am a speech pathologist who treats children with...I am a speech pathologist who treats children with feeding disorders. There are several products for adding calories without adding much volume. Benecalorie, Duocal and MCT oil all can be added to baby foods and bottle with recommendations from your peditrician or nutritionist. I agree with a previous post regarding the benefits of g-tubes. I have many patients with g-tubes who enjoy eating by mouth because we have made it a positive experience, but not required them to have so much of the volume they may need for calories. You can continue to give him foods and drink if he has a g-tube but he will be less stressed about amounts or if he doesn't finish because you can give him the remainder through a tube. They are not a bad thing! Dr. Keith E. Williams at Penn State is a wonderful resource for feeding issues. A speech pathologist or occupational therapist can specialize in feeding therapy and help through some of these issues now so sweet Jonah doesn't begin to associate feeding with negative feelings or pain. I will continue to send prayers for this little man!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-33897654457474578602009-10-07T12:54:54.367-04:002009-10-07T12:54:54.367-04:00Have you tried Peaches ?
That was always the fail-...Have you tried Peaches ?<br />That was always the fail-safe with my daughter - she LOVED the sweetness.<br /><br />Continuing to Pray In AlabamaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-44160026147107247762009-10-07T11:58:13.353-04:002009-10-07T11:58:13.353-04:00I bet if you put Blues DVD in for him you could fe...I bet if you put Blues DVD in for him you could fee Jonah almost anything..that picture you posted last week with him watching Blues..he was oblivious to the world..just like most males when they are tuned in to TV everything else can pass them by.<br /><br />Wanted to let you know that I posted on Katherine's blog that if need to win the $100.00 gift card from Target so I can use it for Jonah..he definitely has my heart. <br /><br />Can Jonah have finger foods (cheerios, cheese cut in little cubes)? Any my kids did go through a time before they turned a year old that they lost some weight (my dgt was in the 25% for her age) but the pediatrician said it was because they became more active. I know you worry about Jonah, that's a mamma's job. <br /><br />We will keep up the praying for a big appetite and healing of blisters..<br /><br />You, Matt & Jonah are in my prayers thoroughout the day.Wanda Wilkinsonnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-67235338600892191192009-10-07T11:42:37.603-04:002009-10-07T11:42:37.603-04:00I had a puker who had to go on solids sooner rathe...I had a puker who had to go on solids sooner rather than later too. I couldn't get him to eat anything! I finally called my father and he told me to try pears. It worked, he loved them! Then we moved on to other stuff and he's been a great eater ever since. 11 years later. :-)Karenhttps://www.blogger.com/profile/09366843936664158258noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-74264522944218576772009-10-07T11:28:05.007-04:002009-10-07T11:28:05.007-04:00I have to agree with "Crystal in IL". S...I have to agree with "Crystal in IL". Same thing with my little man ... he's had the g-tube/Nissan since he was 7 weeks old, and as much as I fought it at first, now I sing its praises! <br /><br />Sure, no mother wants a tube coming out of her child's belly, but there are some advantages. Crystal mentioned many of the ones that I've encountered, and there are even some that just make life a little easier. <br /><br />Be encouraged that he is interested in food and taking a good bit by mouth, though! He looks like a strong little 7 month old to me!<br /><br />Crystal -- if you read this comment, I'd love to chat with you, too!joyehttps://www.blogger.com/profile/16430260308766122280noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-87128377525127890122009-10-07T11:22:02.659-04:002009-10-07T11:22:02.659-04:00I know you get SO many recommendations, but I thou...I know you get SO many recommendations, but I thought I would let you know what worked at our house. It couldn't hurt to try! <br /><br />When doing oatmeal and sweet potatoes I would add a pinch of brown sugar or even sugar to sweeten it. Also with veggies, I would add a TINY bit of salt just to take the edge off. It made a world of difference with our youngest daughter!<br /><br />Hope this helps!!The Slocum Familyhttps://www.blogger.com/profile/01180259246741810753noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-24064787060456458902009-10-07T11:11:05.525-04:002009-10-07T11:11:05.525-04:00In the beginning I was so hopeful my daughter woul...In the beginning I was so hopeful my daughter wouldn't need a g-tube and Nissan but it became painfully clear that she just had to have one. I have to tell you it was the BEST decision we ever made. My husband now thinks all kids should come with a g-tube. No more struggling with weight gain, meds are a snap to give, and if she gets a cold she recovers faster than any of the rest of the family because we can keep her hydrated. We are even making our own baby food and are pushing it through the tube so she is getting all the benifits of real food :) She does oral eat now but we don't stress about it. It is far more important that her nutrition is being met and she is growing well. She will eat and be independant of the tube one day but right now this is what she needs and us too. Trust me there is such a peace of mind to be had when you know your child is being feed well. I wish we could sit down and chat. Although our children have very different medical conditions they have alot in common on the nutritional front. I just wanted to let you know that the tube is not the monster in the room rather the saving grace for all of us.Crystal in ILnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-7249491203067424822009-10-07T09:41:52.099-04:002009-10-07T09:41:52.099-04:00I saw someone mention a sippy cup and just wanted ...I saw someone mention a sippy cup and just wanted to throw out that my son had terrible AR...so much so that he would cry when he saw the bottle b/c he already knew that it meant pain was coming. When he was around 5-6 months we started getting him used to a sippy cup - we just had to take the stopper out of them so it would be more of a free flowing cup than actually haveing to pull it out. It took another month or two before he figured out the sucking motion for a cup was different and then we replaced the stoppers. Anyway, it allowed us to get a little more liquid in him than with just the bottle. <br /><br />As for eatting, we bought a small TV for the kitchen so that we had some good distraction when we were feeding him. Amazing what you can sneak in their mouth when they are tuned in on TV. I can't tell you how many times replayed The Wiggles DVD's to get him to eat ~ I sang them in my SLEEP! But, for the most part, it helped! Just a thought!<br /><br />~Dana in MSAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-11202828424392617782009-10-07T09:05:40.149-04:002009-10-07T09:05:40.149-04:00Yeah! Thanks for the cutie patootie pictures. You ...Yeah! Thanks for the cutie patootie pictures. You are a much better mommy blogger than I am. Praying that he doesn't feel any worse and doesn't get the flu. I was curious and feel free to ignore me if you have addressed this before or don't feel like addressing it, how do you clean him up with his fragile skin? Do you have special cloths? My son is crazy when he eats and baby food was the worst. I don't think I could ever understand what you go through daily for your sweet baby. You are amazing!Sabrinahttps://www.blogger.com/profile/04731071750335900792noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-80279825651263011772009-10-07T08:55:58.070-04:002009-10-07T08:55:58.070-04:00i love love love that last picture!!! such an expr...i love love love that last picture!!! such an expressive face. love it. will be praying he starts eating solids better, for sure. it's so hard at this age. with or without extra issues to deal with! beautiful boy!The Rodgers Familyhttps://www.blogger.com/profile/11635180658564655122noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-3232322341479216142009-10-07T08:54:32.557-04:002009-10-07T08:54:32.557-04:00Hope that he is feeling better! Random thought hav...Hope that he is feeling better! Random thought have you tried feeding him while he is enjoying a favorite TV show? While a horrible habit, I know, a great distraction that I use when I need to get my daughter to eat. She can be very picky...yes they learn too young that they call all of the shots!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-79586247158601196652009-10-07T07:45:28.100-04:002009-10-07T07:45:28.100-04:00I know that he seems young, but have you considere...I know that he seems young, but have you considered trying Jonah on a sippy cup? Not for all his feedings but just to see if he does better if he does not have a nipple in the back of his mouth (where that stupid blister is!). There are so many different kinds on the market that are almost a cross between a nipple and a regular (old fashioned) sippy cup. It might be worth a try and your gonna need to get some pretty soon anyway! <br />Jennifer E.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-19784748803966222002009-10-07T07:33:05.447-04:002009-10-07T07:33:05.447-04:00I think the Green should be Jonah's new color,...I think the Green should be Jonah's new color, it really makes his blue eyes pop!<br />prayers always,<br />2shoesAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-17059187543984713142009-10-07T05:39:26.163-04:002009-10-07T05:39:26.163-04:00Hi Patrice - even though I hardly ever leave a com...Hi Patrice - even though I hardly ever leave a comment I read your blog everyday and LOVE it.<br /><br />Anyway, I just really wanted to encourage you to persevere with feeding Jonah orally. My daughter is 100% g-tube fed, and I really feel now that if I had persevered more with eating and drinking that she would be at least able to eat something! I don't think it matters what you feed him, or how, just keep offering food so that as he grows up he knows how to eat, and hopefully in time he will learn to enjoy it.<br /><br />You are doing an amazing job with him - he is gorgeous - even with a pea beard!Alisonhttps://www.blogger.com/profile/09793960049542281502noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-53969808885996015332009-10-07T02:29:10.653-04:002009-10-07T02:29:10.653-04:00Oh I agree with the YoBaby yogurt comment! My son ...Oh I agree with the YoBaby yogurt comment! My son had bad issues with reflux and his bowels so I started him on solids a bit early to help him out with that. He hated everything it seemed. I finally tried YoBaby yogurt and he gobbled it up like he was starving. It didn't help the reflux but it fixed his bowel problems. I started him on it at like 4 months I think it was. I eventually had to mix the other fruits and veggies into the yobaby to get him to eat them and slowly decrease the yogurt and up the fruit/veggie content. :/ <br /><br />{Oh but on a side note, though YoBaby does have drastically less sugar than regular yogurt, it's still sugar and sugar lowers the immune system, even the sugar in fruit does. So best hold off on starting the yogurt until he's not sick anymore.}<br /><br />I'm so glad Jonah was liking his peas! I'll be saying some extra prayers for him that he gets well ASAP and nobody else comes down with it!*Mirage*https://www.blogger.com/profile/17618483253355777759noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5717639089088531602009-10-07T01:46:07.671-04:002009-10-07T01:46:07.671-04:00I'm praying for your little sweet pea! Get so...I'm praying for your little sweet pea! Get some rest "sister!"<br /><br />In His love, Mollydianemollydianehhttps://www.blogger.com/profile/11291824530889353387noreply@blogger.com