tag:blogger.com,1999:blog-8191367444095035928.post5528228929044493926..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: oh happy dayPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger50125tag:blogger.com,1999:blog-8191367444095035928.post-84659611135443258332009-11-23T12:27:45.803-05:002009-11-23T12:27:45.803-05:00Dear Heavenly Father.. we know that YOU are the ul...Dear Heavenly Father.. we know that YOU are the ultimate Healer, Restorer and maker of ALL things. I know that YOU are able in all situations. I know that YOU are wise above all understanding. We are TRUSTING that You have given your promises to this family and to Jonah particularly that Your plans are to prosper him and not to harm him. We ask that you would bless Jonah's team of medical professionals. Everyone from the food service staff to the surgeons, the rad techs to the nurses. I ask that You would give a special blessing to his surgeons and doctors. That You would bless their families, their finances, their patients, their friends so that their minds would be open and clear to hear the plans that YOU would have for Jonah. So that ANY stress or obstacle that would inhibit their mental clarity would be REMOVED. I ask that you bless these surgeons and doctors with patience, compassion and understanding beyond measure, widsom, passion and knowledge without ending. That YOU would become their hands and feet and that all THEIR paths would be blessed in order that they would in turn bless Jonah. God we ask for Your hand of grace and peace to be with Patrice and Matt as they embark on this journey. That You would surround them with Your arms larger than life and that they would rest in Your arms. Most of all, Father God, we ask that You would continue to hold Jonah near to Your heart. That You would keep him safe and pain free. That You would continue the miracle that You have continually shown us in his life. God we believe that You are able and willing to allow this miracle to continue in his life. We are standing together, firm in your promises that Jonah will go through this surgery and that not ONE hair on his head would be harmed. We believe and AGREE that there is NO ROOM for Satan in this room, in THIS home, in THIS life, in THIS surgery, in THIS hospital. You have said whatsoever is bound on earth is also bound in heaven and whatsoever is LOOSED on earth is also loosed in heaven. We are binding anything wrongdoing or accidental harm that would come against Jonah. We are loosing, complete healing, peace, joy and MIRACLES. We are believing that it is ALREADY done and that You have already placed your perfectly timing and hand in this situation. That you are guiding each step on this path and that YOU alone will be orchestrating this surgery. We thank You Heavenly Father that we can come to You and REST on your firm foundation. <br /><br />In the name of your most precious son Jesus, we pray... amen.Amber Schmidthttps://www.blogger.com/profile/14255596603226871737noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75901029864212911982009-11-21T08:18:18.950-05:002009-11-21T08:18:18.950-05:00we are praying for consistent eating through this ...we are praying for consistent eating through this weekend and next week so you can be thankful with your family!mommahttps://www.blogger.com/profile/00817409011684856251noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-16472067264439563282009-11-20T21:08:22.886-05:002009-11-20T21:08:22.886-05:00praying, praying, praying!!! I hope today was a &q...praying, praying, praying!!! I hope today was a "happy" one too!Jessicahttps://www.blogger.com/profile/00516262372833728047noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-70196151605331023772009-11-20T18:33:04.533-05:002009-11-20T18:33:04.533-05:00YAY! Still praying...
PS What a gorgeous photo!...YAY! Still praying...<br /><br /><br />PS What a gorgeous photo!Kristyhttps://www.blogger.com/profile/14031799085062048231noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-68430721113860748632009-11-20T16:14:31.652-05:002009-11-20T16:14:31.652-05:00Glad it was a great day...way to go Jonah! Keepin...Glad it was a great day...way to go Jonah! Keeping up the prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75529001923282178232009-11-20T15:12:59.394-05:002009-11-20T15:12:59.394-05:00Sending lots of prayers your way. I could feel yo...Sending lots of prayers your way. I could feel your joy in this post and I have a huge smile on my face while writing this. You are amazing. Matt is amazing. Jonah is amazing. Thank you for sharing your ups and downs and allowing me to fall in love with your beautiful little boy. His big blue eyes melt my heart! Keep up posted! :)Nenehttps://www.blogger.com/profile/10819034408996144488noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-4186979204506668472009-11-20T14:26:39.447-05:002009-11-20T14:26:39.447-05:00Praise God. I'm so thankful that he finally at...Praise God. I'm so thankful that he finally ate really well. I'll keep praying you can hold off the surgery and enjoy Thanksgiving with your fam.<br /><br />Oh and what a beautiful picture, Patrice! Absolutely gorgeous!Halfsicilianhttps://www.blogger.com/profile/17376469941014222417noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-25034117518939222422009-11-20T13:40:19.373-05:002009-11-20T13:40:19.373-05:00I'm SO glad you had an awesome day! I am prayi...I'm SO glad you had an awesome day! I am praying for even more awesome days! Hey, sometimes I look forward to just taking out the trash, because then I can get a few minutes of air and sunshine when I've got 3 sick kids. A mom has to get some freedom when/how they can! I'm glad you got a Target run this week.<br /><br />I have been reading your blog since Jonah was born, but don't know much about EB and G-tubes. Is that something that he will outgrow as he gets older? If he gets to an age where he can eat without problems, would they then remove it?Precious 3https://www.blogger.com/profile/16208925308905704822noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-83372215575962056932009-11-20T13:25:18.136-05:002009-11-20T13:25:18.136-05:00We join you in prayer for wisdom and peace!! Beaut...We join you in prayer for wisdom and peace!! Beautiful photo!!Kellihttps://www.blogger.com/profile/12397078414781074612noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-20825393175611270862009-11-20T13:20:47.214-05:002009-11-20T13:20:47.214-05:00I keep thinking that Celine Dion song "Beauti...I keep thinking that Celine Dion song "Beautiful, beautiful, beautiful baby boy...." when I see pictures of him, especially smiling and up to his tricks! Praying for wisdom for you and wisdom for those who will minister to him in medical ways. Happy Thanksgiving to my favorite family in your neck of the woods! Jennifer in Southeast, NCJenniferhttps://www.blogger.com/profile/16629963999337344921noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-90927249772968127302009-11-20T12:40:08.519-05:002009-11-20T12:40:08.519-05:00I'm echoing your prayers....
I know how hard i...I'm echoing your prayers....<br />I know how hard it is to hand your child over to surgeons - and of course, you have so many more issues to deal with. <br />I'll be praying that you'll be able to put it off until after Thanksgiving, and for God's will to be done.Quilting with Jannettehttps://www.blogger.com/profile/16603960654710134226noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-49113153835509800132009-11-20T12:12:53.611-05:002009-11-20T12:12:53.611-05:00Yay for happy days! Praying he gets to eating good...Yay for happy days! Praying he gets to eating good so you all can join the family for Thanksgiving! And also praying for direction and wisdom for his doctors and nurses.Jessihttps://www.blogger.com/profile/16487468369830506234noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-9760591866571271752009-11-20T12:02:57.200-05:002009-11-20T12:02:57.200-05:00Way to go Jonah!!! You rock, little man. Continued...Way to go Jonah!!! You rock, little man. Continued prayers for your family :) I am glad you and Matt were able to come to a decision that you feel good about in regards to the G-Tube. Prayers for all of your nurses and drs (have to mention the nurses first, come on, I am one!!!!) that will be caring for Jonah next week (or whenever the GT surgery happens). Have a nice weekend (and keep up the good work Jonah!!!)<br />Erika from ILerikahttps://www.blogger.com/profile/01233460306102041004noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-82370036844321510692009-11-20T10:45:02.604-05:002009-11-20T10:45:02.604-05:00I am praying for you Patrice. I cannot imagine ho...I am praying for you Patrice. I cannot imagine how hard this is. I know that you are doing your very best to choose what is best for Jonah. You are a good mom and you are doing all you can. Blessings.Triciahttps://www.blogger.com/profile/00349785408418170356noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2581282216072915312009-11-20T10:37:22.691-05:002009-11-20T10:37:22.691-05:00Yay!!! We keep praying for you guys...hoping for t...Yay!!! We keep praying for you guys...hoping for the best outcome possible. Enjoy your weekend and thanks for the updates...many hugs and kisses to sweet Jonut!Toni :O)https://www.blogger.com/profile/01652753669110100387noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-80700950662835823702009-11-20T10:36:41.624-05:002009-11-20T10:36:41.624-05:00That is good news to hear. I do think the G-tube ...That is good news to hear. I do think the G-tube will make things easier for you and for Jonah. I had to laugh getting out means going to Target... My getting out by myself is going to the store LOL things so change when we are mommies...Lisahttps://www.blogger.com/profile/00120580746390516125noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-90037259177202642352009-11-20T10:29:14.394-05:002009-11-20T10:29:14.394-05:00Oh, yay! So glad you had a better day! Continuin...Oh, yay! So glad you had a better day! Continuing to pray for you and Jonah and Matt, for the doctors, and that you get your lovely Thanksgiving. There is just nothing like being surrounded by family.RLRhttps://www.blogger.com/profile/07186598026843397100noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-36541504137705024422009-11-20T09:52:52.162-05:002009-11-20T09:52:52.162-05:00Hi Patrice,
I haven't checked your blog in a f...Hi Patrice,<br />I haven't checked your blog in a few days, and I just got caught up on the g-tube. I think it is a great thing that will really help you. But a thought came to my mind. You said that you weren't waking Jonah up anymore to eat, and yesterday he ate better. Maybe he will eat better if he sleeps more at night. <br /><br />I'm not criticizing in any way (please don't think I am). Just a weird thought that made me think you may be able to postpone the g-tube until after Thanksgiving so you can spend that time with family.<br /><br />Praying for God to show you the correct time and to give you rest. Thanks for keeping us updated and sharing Jonah with us.<br /><br />Praying from Texas,<br />ShannonSpeechlesshttps://www.blogger.com/profile/11074976981681457375noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-81026979976818838332009-11-20T09:51:25.614-05:002009-11-20T09:51:25.614-05:00Ping for you all ... and even more for sweet Jonah...Ping for you all ... and even more for sweet Jonah! Take care young man and hope the g-tube works wonders. I'm sure it will.Sharon and Michaelhttps://www.blogger.com/profile/10176116666835125358noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88520326287533755832009-11-20T09:39:46.440-05:002009-11-20T09:39:46.440-05:00What a tough decision you and Matt have had to mak...What a tough decision you and Matt have had to make. I am thankful that you have found peace in your decision. That will make the rest of these coming days easier. We too will be praying for Jonah and his sweet airway.Mama10EEhttps://www.blogger.com/profile/05004523585108091541noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-86615615908397720962009-11-20T08:58:04.009-05:002009-11-20T08:58:04.009-05:00Wow! that is so amazing!! He sounds like my daug...Wow! that is so amazing!! He sounds like my daughter. She goes a couple days and won't eat anything and then one day she wakes up eating and goes to bed eating - like she's storing up for winter or something! BUT - I know unfortunately that doesn't work for Jonah - EB needs that constant nutrition, not once a week nutrition overload. <br /><br />I'm glad that you are through the struggle of the decision and are at peace with what needs to be done. <br /><br />Definately praying....<br /><br />JanelJanelhttps://www.blogger.com/profile/12741507889298351296noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-16275859018466475502009-11-20T08:38:26.622-05:002009-11-20T08:38:26.622-05:00Hi Patrice:
So glad to read the happy blog. I s...Hi Patrice:<br /> So glad to read the happy blog. I sense that you are at peace with the gtube decision. I think it is the best for everyone, especially for Jonah. I still don't know how you guys do it, everyday. You EB mommies are just awesome. I am inspired by you, Meg and Courtney. Hang in there and God Bless You all. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-50677223834579096642009-11-20T07:41:59.000-05:002009-11-20T07:41:59.000-05:00He is just so cute! Sorry that you are having to ...He is just so cute! Sorry that you are having to make such decisions... especially since it may affect your holiday.<br /><br />Will continue to keep you in my prayers!<br /><br />Keep the Jonut pics coming!!Didihttps://www.blogger.com/profile/10839914231495101450noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-40836856935389533412009-11-20T07:41:51.532-05:002009-11-20T07:41:51.532-05:00awww great picture! I actually gasped aloud when I...awww great picture! I actually gasped aloud when I read 22.6 oz!Nicolehttps://www.blogger.com/profile/07519551151835647985noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-21607907147783397292009-11-20T07:36:23.560-05:002009-11-20T07:36:23.560-05:00I have a message for Jonah: "Way to go Champ...I have a message for Jonah: "Way to go Champ!" Just when you are feeling so low, he lets you know he is going to be okay. It's wonderful to see you and Matt on this journey too - so great you are on the same page. I'll be joining you on the prayer that he be able to hold off until after Thanksgiving so you can share him with your extended family. Love the sweet picture of your sweet little boy!Kim Mhttps://www.blogger.com/profile/08352489657428563463noreply@blogger.com