tag:blogger.com,1999:blog-8191367444095035928.post4209739251607668108..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: nothing muchPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger82125tag:blogger.com,1999:blog-8191367444095035928.post-55635751902282602402010-02-10T10:28:26.792-05:002010-02-10T10:28:26.792-05:00I read your blog occansionally. I just read about ...I read your blog occansionally. I just read about your Target experience. I am so sorry this happened. My oldest son was born with a bilateral cleft lip and palate. He looked quite different from most babies. We would get stares, ugly comments, etc. It sucks and is totally unfair. I try to remind myself that people who do this are ignorant and the problem is theirs and not mine. It doesn't make it any easier though. Good luck to you and your family.Jillhttps://www.blogger.com/profile/13396873880754375739noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-82964906474278875692010-02-05T22:29:32.582-05:002010-02-05T22:29:32.582-05:00Maybe a t-shirt-- that says, GOT EB? would help or...Maybe a t-shirt-- that says, GOT EB? would help or a bib?? Just a suggestion... Obviously with out these blogs I would have never known about EB. Thanks Patrice!Jenniferhttps://www.blogger.com/profile/12541501520198470301noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-9755669706067993072010-02-05T15:19:41.937-05:002010-02-05T15:19:41.937-05:00Praying for you all... WEndyPraying for you all... WEndykruethhttps://www.blogger.com/profile/05921074648456614644noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-3759529877825378752010-02-05T12:30:39.378-05:002010-02-05T12:30:39.378-05:00That just breaks my heart. I was thinking to myse...That just breaks my heart. I was thinking to myself how I would react if I saw you and Jonah in Target. You would probably think I was a freak for freaking out about seeing ya'll! I'd have to compose myself and hold back the excitement I'd have with getting the chance to meet ya'll in person! I wish that girl knew the story behind Jonah and what a miracle he is. Maybe she'll come across your blog and learn about him. <br /><br />I feel like I need to tell you again, how much I appreciate the time and effort it takes for you to blog. Your stories have allowed me to get to know and love Jonah. I enjoy your stories and love being able to pray for your family. <br /><br />Take as much time as you need. I'll be checking back awaiting your next post and precious pictures of Jonah. <br /><br />~Ashleyashpuckhttps://www.blogger.com/profile/07519317750957309709noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-62961704106165770792010-02-05T12:03:39.522-05:002010-02-05T12:03:39.522-05:00I am praying for you and your family! God WILL he...I am praying for you and your family! God WILL hear AND answer. Much love~.https://www.blogger.com/profile/14206107062378924535noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-26326989987150305962010-02-05T02:48:45.544-05:002010-02-05T02:48:45.544-05:00I saw this and it made me think of your episode wi...I saw this and it made me think of your episode with the lady at Target http://www.youtube.com/watch?v=-N7TgcY4sVc<br />You can be bitter, or you can educate.Unknownhttps://www.blogger.com/profile/09955531845731246131noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-63572575868466424992010-02-05T01:17:16.237-05:002010-02-05T01:17:16.237-05:00Praying for you. Sorry you had such a horrible ex...Praying for you. Sorry you had such a horrible experience. I think Jonah is the cutest thing ever along with my sweet baby boy and that sweet Stellan. I can't imagine how your heart must ache for Jonah. Just know, you are doing such a great job. Even on your "ugh" days. We moms are allowed A LOT of those!<br />Much love!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-67179151152093456902010-02-05T01:00:26.313-05:002010-02-05T01:00:26.313-05:00I'm glad you said something to that rude chick...I'm glad you said something to that rude chick. People without common decency should be pitied. I'd hate to have to live with myself if I was that rude. I think Jonah is absolutely adorable and I'm sure all your blog readers would agree with me. I wish all the starers could see that too. Glad you're taking some time to take care of yourself. I'm also glad to hear that Jonah's little boy parts are doing better. I hope they continue to heal and fast.Bridgesfamhttps://www.blogger.com/profile/02493509789167542366noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-46531271383254595782010-02-04T23:47:02.150-05:002010-02-04T23:47:02.150-05:00Oh, Patrice! I got so mad (and hurt) reading your...Oh, Patrice! I got so mad (and hurt) reading your post tonight! I wanted to smack that girl upside her head!! Sending you a big hug and lots of prayers! That's cool that you ran into someone with a Jonah magnet. Enjoy your down time and we will be here when you come back!LisaLhttps://www.blogger.com/profile/05271092686861372345noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-32106554281982247122010-02-04T23:00:34.794-05:002010-02-04T23:00:34.794-05:00Oh Patrice, I know exactly how you feel about peop...Oh Patrice, I know exactly how you feel about people staring. My grown son has a mild case of cerebral palsy and it affects him slightly physically. Therefore he walks a little abnormally. I have seen and still see people stare at him. If we are walking into a store and we meet people walking out, I can see their reflection in the doors and they are turning around just staring away. I too have confronted people. It makes me so mad I could bite nails. Sometimes I even stop and tell people what he has.<br />Now, on a positive note, I saw a car on Reynoda Road yesterday with a "Jonah" magnet, so I followed the guy into a service station parking lot, rolled down my window and talked with him for a moment. As it turns out, his children's nanny knows you guys! I just thought it was so cool to see a "Jonah" magnet like that!<br /><br />Anyway, darlin, I pray you are doing better today and have overcome your gloominess. It's got to be so hard some days. I love you and your family and pray for you all every day.<br /><br />Love & prayers,<br />Sandy MooreSandraDeehttps://www.blogger.com/profile/07973725200506091107noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-40863241289202374132010-02-04T22:41:30.999-05:002010-02-04T22:41:30.999-05:00I want you to take care of you girl because you ta...I want you to take care of you girl because you take care of so much else. I saw in Walgreens a t-shirt that read "Cutest Baby Ever, Stare if you Must" I immediately thought of Jonah. I went back to buy it. Gone. Look for one. I am going to look for one too for you guys. Praying for you too. This "winter" season will come to an end.<br />Jennifer in Southeast, NCJenniferhttps://www.blogger.com/profile/16629963999337344921noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-39359000204620968692010-02-04T21:23:36.882-05:002010-02-04T21:23:36.882-05:00When people see something they cannot comprehend, ...When people see something they cannot comprehend, they behave in defensive and offensive ways. I'm sure cancer kids get stares all the time too, but they at least have commonality on their side. Most people know that bald children are often undergoing chemo. Very few people are aware of EB. Regardless, it is never okay to act the way that person acted toward you and Jonah. I'm sorry the world is full of people like that, who take no time to consider and reflect and think before they speak. I'm sorry Jonah will have to encounter such individuals his entire life. I pray right now that God gives him a great sense of humor so that he can shrug it off and go be with the people who love him and know him as the child of God he is. <br /><br />Tonight, I also pray for you, Patrice! May God bring comfort to your spirit, rejuvenate your passion, and give you what you need in the way of friendship. You have great support for your amazing baby boy. You also need something that's just for you, whether a good friend, a huge chunk of TV, or a great read. Thinking of you and praying this comes your way soon!<br /><br />--Kelley in GAjandklandhttps://www.blogger.com/profile/03228086978737796576noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-55892826364621072982010-02-04T21:17:21.130-05:002010-02-04T21:17:21.130-05:00There's a good Focus on the Family podcast tha...There's a good Focus on the Family podcast that you may want to listen to. It's called "Embracing Children Who are Different". It aired January 10.<br />It's really okay to not blog and to take care of yourself. Being tired can REALLY affect your mood. You are in a marathon so you must pace yourself.Marlohttps://www.blogger.com/profile/16562961657244994862noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-18184263118150272382010-02-04T21:03:24.099-05:002010-02-04T21:03:24.099-05:00Patrice the Lord brought you to my heart and mind ...Patrice the Lord brought you to my heart and mind on the way to work today. I prayed for you. I prayed for your mind. I know when I have things that concern me, my mind can go over and over it. I can just imagine hard it must be for you to calm your mind with things of Jonah. Especially since there is not alot of EB information for you. I know you try things daily with feeding, and dressings. It was so heavy on my heart for you to have peace of mind. To have a quiet mind. I thought of the verse in the bible about tossed to and throw like the wave. I know my mind can go to that place very easily. Not sure if this is what happens to you but please no you were heavy on my heart and I prayed for your peace of mind.<br />Have a restful weekend . . .Maryellenhttps://www.blogger.com/profile/08375436627544043508noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-32427053708816564342010-02-04T20:36:02.679-05:002010-02-04T20:36:02.679-05:00I'm sorry you have to deal with such crap! BUT...I'm sorry you have to deal with such crap! BUT on a very positive note I was at a consignment sale today, JumpinJaxKids, here in Jacksonville and they had Johan's magnets. I bought one at the last sale, last spring. I just thought I let you know! I just thinks that's so cool!!!<br />Try to get some rest & take care of you!!!kathunthttps://www.blogger.com/profile/04616359912620026315noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-20846075222303257682010-02-04T20:27:24.679-05:002010-02-04T20:27:24.679-05:00Patrice, Good for you deciding to go to bed earlie...Patrice, Good for you deciding to go to bed earlier, I feel like that really helps in the mood department and I need to do it more often myself!<br /><br />As for the staring, I actually thought about you and Jonah Tuesday at the gas station. My 3 year-old woke up with spots all over his face on Monday, and he had his 3 year check-up on Tuesday and by then they had spread to his hands also. So I had to go in the back door of the doctor where all the rashy kids are sent, and the doctor diagnosed him with impetigo. On the way home, we stopped at the gas station (why, when I ask my kids where they want to go for fun, they say 7-11, I don't know) to get a treat for being good at the doctor and I felt just a taste of what you must go through when you go out. It made me want to tell everyone what he had and that he wasn't contagious. <br /><br />My boys also know Jonah, like another one of your commenters, and I was able to explain to them how everyone is different so hopefully they won't grow up to be one of those rude starers! And by the way, if I ever run into you which will probably never happen since I live in Florida, I would also be hitting my husband's arm saying "That's Patrice! And Jonah! I have to go talk to them!!!" :) Praying for you and your funk and I hope you know how awesome you are!vanettenshttps://www.blogger.com/profile/07300353476665231928noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-19638133525576713652010-02-04T19:52:59.790-05:002010-02-04T19:52:59.790-05:00Consider the source, I say when someone says or do...Consider the source, I say when someone says or does something totally stupid! You have to wonder how some people were raised, no manners! My 9 year (like Amanda's boys) like to see the pictures of Jonah and keep up on what you all are doing. Prayers and love from Ohio! If we ever see you in Target, we'll throw kisses your way.ForeverYounghttps://www.blogger.com/profile/05361817699470320321noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-50915565617367641262010-02-04T19:44:22.637-05:002010-02-04T19:44:22.637-05:00Oh Patrice--what a rude girl, she should be banned...Oh Patrice--what a rude girl, she should be banned from Target! It makes me so sad to see kids who are obviously hurting...I don't get why people feel the need to be so rude. Just know that Jonah is loved by so many people and big rude-heads need to just be ignored.amberhttps://www.blogger.com/profile/05994296326375171426noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-53307437230666540452010-02-04T19:40:27.458-05:002010-02-04T19:40:27.458-05:00Thank you for the thank you letter! So excited and...Thank you for the thank you letter! So excited and surprised to recieve that in the mail today!teacheroftwoshttps://www.blogger.com/profile/16123201947913568563noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-49751317759051531882010-02-04T19:01:49.408-05:002010-02-04T19:01:49.408-05:00I am so sorry you had to go through that with the ...I am so sorry you had to go through that with the starers today. I'm praying for you, you amaze me, I cannot even imagine going through all you do with your precious son every day. It is no wonder you feel worn out and down. Take the time you need we will all be praying for you.Erinhttps://www.blogger.com/profile/13169949411104658849noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-28278552855028212752010-02-04T18:46:28.145-05:002010-02-04T18:46:28.145-05:00Well, I never comment, but something led me to com...Well, I never comment, but something led me to comment today. I just love Jonah and your family. Just wanted to express my love and support and let you all know that I'm praying. I hope you can take some time and get to feeling like yourself again soon!amandahttps://www.blogger.com/profile/11980375398132745299noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-77299400219805010852010-02-04T17:32:04.505-05:002010-02-04T17:32:04.505-05:00I look forward to reading your blog every day and ...I look forward to reading your blog every day and think you are amazing! Jonah is lucky to have you and Matt! He is beautiful and don't let some teenagers make you think otherwise.<br />You veg and get some rest and all of your faithful readers will be here waiting and praying for you :)<br /><br />Cheryl in ALCheryl Ezellhttps://www.blogger.com/profile/16895551948408977383noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-51952576396057030442010-02-04T17:01:15.355-05:002010-02-04T17:01:15.355-05:00Praying: "Come to me all you weary and burden...Praying: "Come to me all you weary and burdened, and I will give you rest." - Matthew 11:28.<br /><br />Blessings to you from Michigan!Bethhttps://www.blogger.com/profile/09000554887585110598noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-87807015581129625732010-02-04T16:50:02.541-05:002010-02-04T16:50:02.541-05:00You're so much nicer than me, Patrice. I would...You're so much nicer than me, Patrice. I would have been a lot less of a Christian example, and strung her up by her toes! <br /><br />jennJennhttps://www.blogger.com/profile/01461430399513052126noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-43396898448565267032010-02-04T16:15:11.322-05:002010-02-04T16:15:11.322-05:00You need to get some kind of a t-shirt made up tha...You need to get some kind of a t-shirt made up that you can wear around when you are out and about that "kind of" explains. Then maybe you wouldn't feel so bad about people staring. Not that it will make you feel any better, but still. Totally unrelated, but I always wanted to get a shirt before I started showing that said, I'm pregnant this is why I am running so slow. I think we tend to feel self-conscious when we know that things are usual with us.<br /><br />Hang in there. You are a great mommy and much stronger than I think I could be. Get some rest and that should help rejuvinate you a bit. Sleep deprivation wreaks havoc on your disposition and outlook.Kimhttps://www.blogger.com/profile/00325910181778963009noreply@blogger.com