tag:blogger.com,1999:blog-8191367444095035928.post2898574026675261060..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: weird dayPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-8191367444095035928.post-45002759039478671682010-06-22T08:02:58.387-04:002010-06-22T08:02:58.387-04:00I just want you to know that I read your blog and ...I just want you to know that I read your blog and truelly enjoy it. My seven year old has started reading along with me (well I read and she listens). She did ask what happened to him but never has she thought you would have hurt him. <br />My son has a picking disorder. Instead of cutting he picks so his legs look they have been attacked by infected mosquitos. a man actually stopped and questioned us about it in BK yesturdaytrooppetriehttps://www.blogger.com/profile/17760346169494672225noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-300345044825618842010-06-21T00:12:30.272-04:002010-06-21T00:12:30.272-04:00oh my. I am good friends with Melissa, Luke's ...oh my. I am good friends with Melissa, Luke's Mommy...and frankly...I don't know how ya'll can hold your tongue when people say such things?!?! I couldn't even be nice to a woman who accused me of not putting sunscreen on my little guy's face (it's just eczema). What a testament you are!!! I might be a little biased, since I have one myself...but your little blondie, blue eyed boy is so stinkin cute! :)Elizabethhttps://www.blogger.com/profile/04533897341913339318noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-46638326587495209262010-06-20T23:37:26.518-04:002010-06-20T23:37:26.518-04:00Sorry that yo had to experience that lady that did...Sorry that yo had to experience that lady that didn't know when to keep her mouth shut when you were already having a such a rough day. UGH! Hope you enjoyed Friday; night lights. I love that show!!!<br /> Give Jonah hugs.<br />Hugs and PRayers<br /> Rachel in TNRachelhttps://www.blogger.com/profile/10146322185715011803noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-78543350620908761512010-06-20T15:24:07.323-04:002010-06-20T15:24:07.323-04:00Lady must have been BLIND! Did she miss the HAPPY,...Lady must have been BLIND! Did she miss the HAPPY, HEALTHY, SMILING little boy with you?! <br /><br />Good for your for being the better person...not sure I could have been :/Megan Smithhttps://www.blogger.com/profile/07732789728066989540noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75051776532630663452010-06-20T14:35:19.423-04:002010-06-20T14:35:19.423-04:00Dear Patrice & Jonah,
Do you have the mean lad...Dear Patrice & Jonah,<br />Do you have the mean ladies' address? I want to kick her in the teeth. Love, Ashley <br /><br />Haha Seriously, what a hag! You did an amazing job biting your tongue, but, you know what... I think it might be better for your sanity if you just told people, "That is very inappropriate of you to say!" I mean... ugh! Did you see/hear about the EB special that was on Nat Geo? Extraordinary Humans.ashleyjnchttps://www.blogger.com/profile/00542258769081044206noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-72623456654060981552010-06-20T13:02:31.113-04:002010-06-20T13:02:31.113-04:00Blog surfing this morning and found myself spendin...Blog surfing this morning and found myself spending some time with you and your beautiful family. I had to share my shock over the comment that this lady at the store made to you. Unbelievable! It makes me so sad that our values are so backwards. I understand about not having a filter, but this somehow feels so different. <br /><br />I hope that you have a wonderful fathers day.foxyhttps://www.blogger.com/profile/05482866425915180237noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75627535295182451652010-06-19T22:38:13.786-04:002010-06-19T22:38:13.786-04:00That really breaks my heart...in half...I'm so...That really breaks my heart...in half...I'm so sorry people can be so rude and insensitive...she was being that way and I would have wanted to slap her myself. God bless you for your strength and you are a GREAT mom and don't let anyone tell you differently. Big hugs to you and thank you for being you!Toni :O)https://www.blogger.com/profile/01652753669110100387noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-24110527985758919612010-06-19T22:13:36.297-04:002010-06-19T22:13:36.297-04:00I'm gonna drop kick that old lady and flush he...I'm gonna drop kick that old lady and flush her dentures down the toilet.Jenny Hintzehttps://www.blogger.com/profile/04542358917581174277noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-72885076904317623942010-06-19T21:00:00.209-04:002010-06-19T21:00:00.209-04:00Patrice: You don't owe any explanation to anyo...Patrice: You don't owe any explanation to anyone. You know the truth and better yet God knows the truth. <br /><br />You live for an "audience of ONE"<br /><br />And we all know Jesus is well pleased . . .Maryellenhttps://www.blogger.com/profile/08375436627544043508noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-66863060367214102542010-06-19T20:33:06.184-04:002010-06-19T20:33:06.184-04:00praying for you!! so sorry for the insensitivity ...praying for you!! so sorry for the insensitivity of others....your words make me double mindful to watch my words. You never know the burdens others are bearing.otherwise known as momhttps://www.blogger.com/profile/00364269353041509784noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-75278269532996603902010-06-19T20:32:46.476-04:002010-06-19T20:32:46.476-04:00Hey. I'm sorry you had to go through that. I o...Hey. I'm sorry you had to go through that. I once heard a woman tell he daughter,"Look at that baby. It makes you wonder what she did to him." at the dr. office. Thankfully, my other kids were there so I didn't burst into tears, but I know that knife in the heart,stomach dropping feeling. I hate that Jonah and your family has to go through the pain of EB. On a brighter note, things will be better soon, right! The BMTs will cure EB and all of our sweet kids can have their life back. :) Praying for you everyday, JenniferJennifer Edlinghttps://www.blogger.com/profile/07828194845522082991noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2021507874531834962010-06-19T17:29:52.358-04:002010-06-19T17:29:52.358-04:00People are so ignorant! I shall add this story to...People are so ignorant! I shall add this story to the long list of stupid things people have said to parents of children with special needs. I try to remember, note I said try because it's easier said than done, when I hear hurtful comments that it's a reflection about the person speaking them and nothing about me. <br />As for the eating thing, what if you just dropped it for a bit? I know that sounds insane, "drop eating" but drop oral eating for a day or so and see how it goes. My logic is that this will take you out of the power struggle entirely. You aren't really saying, "OK Jonah you win" instead you are just going to avoid the topic (by not bring out the spoon) and see if maybe he's ready to change his mind on his own. I like this tactic for things we can't MAKE kids do.. if he was acting like this because he didn't want to pick up his toys, I'd say hand over hand make him do it until he learns. But you can't really shove the food down his throat.. so the only way to "win" this "power struggle" is not to play. What do you think? If nothing else, it might give you a break from the battle, too. I know that you'll find a way to get through this.. you are a wonderful, wonderful momma!Emilyhttps://www.blogger.com/profile/08710118552915270569noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-21049665088425454472010-06-19T16:38:24.224-04:002010-06-19T16:38:24.224-04:00My mouth dropped when I read your tweet....I felt ...My mouth dropped when I read your tweet....I felt so terrible! Too bad she hasn't learned to keep to herself in her old age, hey?<br /><br />Hope Jonah gets back to his little piggy eating ways...SOON!Brandiehttps://www.blogger.com/profile/09220736049164217548noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-82907904987429805632010-06-19T16:23:42.403-04:002010-06-19T16:23:42.403-04:00Just a thought, but if you think it is a control i...Just a thought, but if you think it is a control issue, have you tried putting him in control and allowing him to feed himself? Give him the spoon, or just use his hands, whatever, but give him the food and walk away, or sit down nearby and eat something yourself. Don't react in any way no matter what he does...Keep it very low key.Ginnyhttps://www.blogger.com/profile/03429632033668158717noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-6351711665169974282010-06-19T12:52:24.401-04:002010-06-19T12:52:24.401-04:00It makes me so embarassed to be from WS to hear su...It makes me so embarassed to be from WS to hear such things! I think one amazing thing about your blog having reached so many people is there are so many now who will think first before making cruel assumptions about a child (or any person) who looks different from them. I have a daughter who is six weeks older than Jonah and she loves to see the pictures of Jonah and Gabe and say "baby! baby!" over and over again. I think this blog has made me a better mom because it may not have occured to me to be sure to show Natalie pictures regularly of all different babies and toddlers as early as possible and talk about the cute and silly things they are doing (she likes to laugh with videos of Jonah laughing - thinks he is quite a card :) and how they are just like her. And help her understand the nuances of sensitivity and empathy as early as she can comprehend such life lessons - so that she never becomes one day that person in a store making ignorant assumptions and accusations. I hope that Natalie's toddler years include many playdates with different people - there are few things that would make me feel more successful as a mother than if Natalie grows up understanding that "normal" is relative, and that "weird" is normal (not to mention beautiful and endearing if you ask me. Love your kid!). Bless her heart, with her dad and me as her unquestionably dorky parents, Natalie has no choice but to love, understand, embrace, and appreciate the differences in all people :) Anyway, not great with words, so sorry for the lengthy ramble - If you come to Raleigh (or when we are in Clemmons visiting my parents) would love to get Natalie and Jonah together and truly appreciate how dang cute they are - weirdness, pickiness, uniqueness, tantrum-throwing rotteness (okay, that might just be my child with the rotten streak a mile wide) and all. I think they would be great friends. You have a hilarious sense of humor (and though I don't remember Matt from high school, from your blog I get the impression that he does too) - so of course Jonah will probably be the most entertaining little (well, this is a Christian blog so we will just say "smart-tooshie" ha! :) I can just imagine when he is seven or eight years old and some (we will say "meaniehead") who lives under a rock says something ignorant, he will have a list of sarcastic and hilarious responses a mile long for every dense insinuation or cringe-inducing questions he hears. All of that to say - thank you for Jonah's story, it has made me a better mom.<br /><br />~Kimberly (Randolph) Wallerkimmiehttps://www.blogger.com/profile/04735783757094287123noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-16158686016697604092010-06-19T12:50:13.231-04:002010-06-19T12:50:13.231-04:00Sorry you had such a tough day yesterday. But it ...Sorry you had such a tough day yesterday. But it sounds like it was the perfect day for you to buy jewelry! It was so good to see you last night, too:)Jillhttps://www.blogger.com/profile/15209192398146044052noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2725297198216390012010-06-19T12:50:13.232-04:002010-06-19T12:50:13.232-04:00This comment has been removed by the author.kimmiehttps://www.blogger.com/profile/04735783757094287123noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-28494775068218508852010-06-19T12:49:01.095-04:002010-06-19T12:49:01.095-04:00It's one thing to think it, it's a whole o...It's one thing to think it, it's a whole other thing to actually say it out loud.<br /><br />I work in foster care and everyday I work with children whose parents HAVE done horrible things to them, and honestly, if I saw you and Jonah or a child like Jonah (since I would recognize Jonah), I would assume that he had a medical condition, because there is no way if a parent caused a child to be covered in bandages that they would have custody of them (or walking around in public running errands).<br /><br />As for the food thing, there is a comedian who actually jokes about the pathological need parents have to just make.their.children.eat. My daughter is a typical kid and I've been known to nearly lose my temper when she refuses to eat. The harder I pushed, the more she refused. I've learned to let go of the control, it's one of the few things she truly has control over. Of course, it still stressed me out.JenandAshhttps://www.blogger.com/profile/14771136147931493687noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-81051087283407100092010-06-19T12:26:03.350-04:002010-06-19T12:26:03.350-04:00You are such a strong woman to be able to treat ot...You are such a strong woman to be able to treat others with grace when they so clearly lack a filter. You blessed that woman in the pharmacy.<br /><br />About the eating and control thing. Something that helps my guy eat and have control over something is to put a few cheerios or crackers or something he can "do" on the tray while I feed him. I completely understand the lack of eating due to control. When my husband deployed, my son (8 months) gave up eating solids entirely and didn't pick it up again until about 13 months. Giving him some utensils and crackers/cereal seemed to help.Alisonhttps://www.blogger.com/profile/09308721098004950729noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-5289760293365720292010-06-19T11:39:30.027-04:002010-06-19T11:39:30.027-04:00Patrice,
I have read your blog for over a year now...Patrice,<br />I have read your blog for over a year now and have only commented a few times. I am also a high school Spanish teacher and love your 'Spanish' posts. You amaze me with your honesty, humor and unbelievable care for Jonah! I am so sorry with what you had to deal with today, just not okay. Cheering you on in Oklahoma and hoping for easier days ahead! <br />Take care,<br />Courtney ConnellyCourtney Connellyhttps://www.blogger.com/profile/08134700195034845598noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-32610883135102400482010-06-19T11:16:05.492-04:002010-06-19T11:16:05.492-04:00Oh, Patrice...
As a part of Lucy's post surge...Oh, Patrice...<br /><br />As a part of Lucy's post surgery recovery we had to stick metal rods up her doctor-created anus (she was born without one) every day for 6 months, to keep it open.<br />I felt like the worst abusive mother, crying while i did it, wondering who could come up with this sort of twisted way of "keeping your kid healthy."<br /><br />we have to catheterize her every 4 hours every day, and she has to have enemas through a port in her belly button. i know people think those things...esepcailly when she was suffering from failure to thrive last year because the doctort we had seen told us not to feed her things that would contain fiber and make her go to the bathroom too much. it's complicated, but let me tell you the looks we got when we brought in this gray-looking, skinny kid into a restaurant. NICE.<br /><br />It's hard. It is really, really hard. And to have the guilt on top of all you yourself have been through, all he's been through, yeah. <br /><br />You were far nicer than I think I might have been. :)<br /><br />And seriously, reading your blog yesterday about adoption just stopped me in my tracks. I've been praying fervently for "Signs". <br /><br />**chills**Anonymoushttps://www.blogger.com/profile/14686966887504657288noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-19449943595745100402010-06-19T08:22:45.321-04:002010-06-19T08:22:45.321-04:00So sorry that you had to deal with an ignorant lad...So sorry that you had to deal with an ignorant lady. I don't think I would have been so nice. I can't believe how rude people can be.<br />You are an amazing Mommy and please don't let rude people get you down. <br />Praying that the eating gets better, and it will. Take care guys, and give Jonah a gentle hug for me. Love you guys. Love Leah's NanaLindahttps://www.blogger.com/profile/15650120957253451148noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-14108988802041719882010-06-19T08:16:08.545-04:002010-06-19T08:16:08.545-04:00Cheez. That thought never entered my mind. I don...Cheez. That thought never entered my mind. I don't even think he has the look of abuse at all! You reacted way better than I would have, that's for sure! I'm so sorry for all the crap you have to put up with girl. Will be praying for you extra today.the-mommy-personhttps://www.blogger.com/profile/04428463661481282846noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-33224047729841980482010-06-19T06:53:52.405-04:002010-06-19T06:53:52.405-04:00aw sweetie.......i'm proud that you didn't...aw sweetie.......i'm proud that you didn't punch that lady and or even "rough talk" her (although a walking stick jab and a firm "ghiiiiit" might have done the trick.) why the why don't people mind their own??? sort of funny story though.<br />hang in there. :)Jennifer Strosniderhttps://www.blogger.com/profile/05771682983947914846noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-2705752755110513952010-06-19T06:27:27.276-04:002010-06-19T06:27:27.276-04:00Patrice, So sorry that you had a rough day yesterd...Patrice, So sorry that you had a rough day yesterday. Some people can be very insensitive when they are ignorant about the situation you are in. An EB awareness card sounds like a good idea. It's sad that you have to worry about that but at the same time it might help more people to be aware of the illness and possibly lead to more interest in research and a cure :)I have a seven month old daughter, Anna, at home and I am praying for you and other EB families out there. Thanks for your blog so that we can follow Jonah's progress and for your candidness about how you feel. Wishing you all the best. <br />Laura ValetuttoAnonymousnoreply@blogger.com