tag:blogger.com,1999:blog-8191367444095035928.post1192279495477947839..comments2023-10-07T07:56:14.379-04:00Comments on Before The Morning: our storyPatricehttp://www.blogger.com/profile/06865294910862077812noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-8191367444095035928.post-60714984132956688902011-02-05T19:22:38.220-05:002011-02-05T19:22:38.220-05:00I am sitting here reading your story and I am tryi...I am sitting here reading your story and I am trying to hold it together. I could not imagine going through what you and your family have gone through. You and your husband are so incredibly brave and strong. What an inspiration you are. Thank you for sharing your story with the world. God Bless.Anonymoushttps://www.blogger.com/profile/02303213230828722404noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-62764623215525862572011-01-24T17:41:49.318-05:002011-01-24T17:41:49.318-05:00Thank-you for sharing your story. Sending love an...Thank-you for sharing your story. Sending love and prayers to you and your family - especially to your beautiful little boy and your darling angel in Heaven. <br />My husband went to school with a boy with a similar condition (or it may be the same, I'm not sure). Here's the link to his story - he's in his early 30's now and a motivational speaker. I hope your shared experience gives you both strength. http://www.deanclifford.com.au/Page/motivational-speakersKatie Machttps://www.blogger.com/profile/02309290505707324115noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-77291549953215048562011-01-18T18:39:48.078-05:002011-01-18T18:39:48.078-05:00You are a wise woman, putting your trust in GOD to...You are a wise woman, putting your trust in GOD to guide you with your child. Nobody knows more about you and you body than GOD. I can only thank HIM for helping me and my husband for giving us the wisdom to care for Scott when he was at home. May GOD richley bless you in caring for Jonah. He is a lovely child. Gail WatkinsUnknownhttps://www.blogger.com/profile/16589977959854367218noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-13457957115111911132011-01-16T09:43:22.787-05:002011-01-16T09:43:22.787-05:00Your story is very touching and your little guy is...Your story is very touching and your little guy is soooo cute! What a great smile! I'm just looking at your blog for the first time today and it means a lot to me. My little boy is 5 months old and also has a very very rare genetic disorder. While the issues our kiddos face are very different, our journey's are similar. Thank you for sharing!Sarahttps://www.blogger.com/profile/03871480532294650203noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-80109024383364843372011-01-07T15:57:26.436-05:002011-01-07T15:57:26.436-05:00I sat here and read your story, and yes, cried als...I sat here and read your story, and yes, cried also. I, too, had a baby that was born sleeping at 37 weeks. I truly understand how you felt. I couldn't bear to be in the maternity ward around all the new moms with cries coming from their rooms. I asked the nurse if there were any unwanted babies in the hospital. Were there any mothers that didn't want to take their babies home with them? Of course, there were not, but I wanted my baby so bad and longed to take him home with us. While the other parents were rejoicing, my husband and I were planning a funeral. This happened in 2004 and many tried to convince me to get my tubes tide so this wouldn't happen again. I needed to have another child and could not give up. Two years later, I gave birth to a baby boy. God had answered my prayers. I have been pregnant 4 times and have two children. Things happen for a reason, we just don't know that reason until later down the road. Thank you for sharing your story. God bless you and your family. <br /><br />Bobbie Munsey<br />www.blogwithmom.comBlogWithMomhttps://www.blogger.com/profile/06140773607960276322noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-70369212381409610072011-01-05T00:27:20.535-05:002011-01-05T00:27:20.535-05:00This is such an amazing story. Thank you for shari...This is such an amazing story. Thank you for sharing this with me!Jennyhttps://www.blogger.com/profile/00146522589162173524noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-29735012056536204462011-01-04T17:10:54.610-05:002011-01-04T17:10:54.610-05:00So much pain for such young people. I'm so sor...So much pain for such young people. I'm so sorry for all that you've been through, but so glad you are strong enough to share how God has blessed you through it. Thank you.traceyhttps://www.blogger.com/profile/09533860147335133953noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-22870602020105286922010-11-23T16:11:16.762-05:002010-11-23T16:11:16.762-05:00I hope people can learn more about EB. MY boyfrien...I hope people can learn more about EB. MY boyfriend and his daughter have a VERY mild case. Your family will always be in my thoughts.Melissahttps://www.blogger.com/profile/13150473285038295219noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-30680213998037464662010-11-17T10:48:57.185-05:002010-11-17T10:48:57.185-05:00Patrice, we are in this you join in this world to ...Patrice, we are in this you join in this world to extract forward our children, I am Liz Arias Perez of peru, have one a 5-year-old baby is called Ariadne Milagros Ledesma, she has DEB and presents estenosis narrowness, needs to be produced to the briefness and this operation only they can do it in the cinncinnatti childrens and I am in Peru here there are no specialists, I ask you that pòr favor you help me contact with algun specialist to be able to travel for there and could save my daughter.<br /><br /> Thousand graces that god blesses,<br /><br /> I leave my telephone you 0051064964234054 and my mail: liznatia@hotmail.com <br />my blog:lizaribellaandpauloledesma@blogspot.com<br /><br /> REGARDS OF THE PERUVIAN FAMILYLiz Natalie Arias Perezhttps://www.blogger.com/profile/11482008412194557237noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-88412364737523164082010-11-16T22:51:43.874-05:002010-11-16T22:51:43.874-05:00there aren't enough words to say how amazing y...there aren't enough words to say how amazing you and your family must be. i found your blog through tripp, you and courtney make me a better mom, a better person.Brittanyhttps://www.blogger.com/profile/16933731155065189330noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-54370529736246977712010-10-01T16:52:37.914-04:002010-10-01T16:52:37.914-04:00I work with an organization in Uganda called Servi...I work with an organization in Uganda called Serving His Children. A baby was brought to them recently with EB. I'd like for you to read this post and send it on for prayer to anyone who might be a prayer warrior! www.servinghischildreninuganda.blogspot.comMcClain, Candace, Bretthttps://www.blogger.com/profile/03552539364885114298noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-67120275991958944142010-09-29T17:32:09.034-04:002010-09-29T17:32:09.034-04:00Found you accidentally too...wow...amazing...tears...Found you accidentally too...wow...amazing...tears...beautiful.The Sanchez Familyhttps://www.blogger.com/profile/02193773268823617205noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-47423761001658001762010-09-17T18:56:30.068-04:002010-09-17T18:56:30.068-04:00I found your blog accidently. You are so strong. ...I found your blog accidently. You are so strong. Your son is a sweetie. I've never heard of this condition and will be researching it more. I work in the health field. It amazes me every day how strong some families are and what their able to do. You are doing a wonderful job!Angie Bhttps://www.blogger.com/profile/11875965090243148074noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-87717853980783275012010-08-26T14:57:45.857-04:002010-08-26T14:57:45.857-04:00I can't stop my tears while reading your story...I can't stop my tears while reading your story. You're family is beautiful and your blog is really encouraging...-c-h-i-ehttps://www.blogger.com/profile/00783673743541333309noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-17961710512581800562010-08-26T12:36:27.120-04:002010-08-26T12:36:27.120-04:00What an amazing beautiful story and family. You a...What an amazing beautiful story and family. You and your family are an inspiration.The Black Familyhttps://www.blogger.com/profile/11486699761349958282noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-91196021301621245232010-08-17T00:09:04.795-04:002010-08-17T00:09:04.795-04:00Just read your story, your faith is amazing, isn&#...Just read your story, your faith is amazing, isn't God good? I am a clinical aromatherapist and would love to talk to you about essential oils that could possibly soothe Jonah's skin. Please feel free to contact me for a free consultation at wisdom4wellness(at)aol(dot)com.<br />Blessings,<br />JenJennifer Nordin, LMT, CPThttps://www.blogger.com/profile/02107051691016445915noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-74058887485869139702010-08-16T02:10:36.300-04:002010-08-16T02:10:36.300-04:00Sending loving thoughts your way.
What an inspirin...Sending loving thoughts your way.<br />What an inspiring story.<br />God bless you.Tree Hugging Attorneyhttps://www.blogger.com/profile/16908793124098676834noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-82499053563410763252010-08-09T21:11:37.453-04:002010-08-09T21:11:37.453-04:00I just came across your blog. Your story is heartb...I just came across your blog. Your story is heartbreaking and inspirational. Thank you for sharing. I'm so sorry for your loss. I am blessed to have a one year old daughter, but just lost my son when I was 19 weeks pregnant in May. I will keep you, your husband and your sweet Jonah in my thoughts.Andreahttps://www.blogger.com/profile/09785882007350289786noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-46940393231883728782010-08-05T21:33:46.199-04:002010-08-05T21:33:46.199-04:00Wow. Your story is an inspiration. I've been g...Wow. Your story is an inspiration. I've been going through a rough patch in my life but it's nothing compared to what you have been through. Your family has such amazing faith and strength. I will be praying for you.Lizhttps://www.blogger.com/profile/09837306873404141673noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-54106691526986636182010-08-04T15:06:28.187-04:002010-08-04T15:06:28.187-04:00Thank you for sharing your story. Your baby is bea...Thank you for sharing your story. Your baby is beautiful, and so are the two of you. I love the pictures of you guys kissing Jonah. God bless you in every sense. Thank you for your example and your faith.Tedhttps://www.blogger.com/profile/12046368246107590589noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-91198153684890088782010-08-03T21:07:42.588-04:002010-08-03T21:07:42.588-04:00You are an amzing writer, and your story is so ins...You are an amzing writer, and your story is so inspirational!<br />I will most definetly keep you and your family in my prayers!!megan chloehttps://www.blogger.com/profile/11291387429089007395noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-62271646626196568382010-07-27T09:04:17.619-04:002010-07-27T09:04:17.619-04:00I will pray for you! And I'll pray for my goos...I will pray for you! And I'll pray for my goose bumps to stop as well, cause boy oh boy, I can't think of anything else!<br /><br />God bless!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-56044377936950731542010-07-22T02:26:12.302-04:002010-07-22T02:26:12.302-04:00Hmmm..........Something about that name Jonah! Jon...Hmmm..........Something about that name Jonah! Jonah means dove in hebrew and I have found over the past 2.5 years that my Jonah has been in mty life that even through the scary times he brings with him the peace that all will be well.Jessicahttps://www.blogger.com/profile/05186105693175131337noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-64850117860592331842010-07-06T19:52:52.023-04:002010-07-06T19:52:52.023-04:00I am new to your blog. I am amazed and encouraged ...I am new to your blog. I am amazed and encouraged by your story. Thanks for not just sharing but also for allowing God to use you to encourage others. My family also has had a rough season but we too see God's work in it. As I read your story I cried and thanked God that He is faithful. Be blessed !Stacyhttps://www.blogger.com/profile/08183326637046386175noreply@blogger.comtag:blogger.com,1999:blog-8191367444095035928.post-53141265140726600212010-07-02T09:21:09.299-04:002010-07-02T09:21:09.299-04:00Patrice... I send Matt, Jonah and you a lot of lov...Patrice... I send Matt, Jonah and you a lot of love and prayers from India! Believe in God and he will guide you!Wife Anewhttps://www.blogger.com/profile/10047669104056406011noreply@blogger.com